-
- Resources
-
Unmet Needs Brochure
View results of the HAE
Attack Journey Survey and
Burden of Treatment Survey
to learn more about unmet
needs in the HAE community -
Shared Decision-making Guide
A guide to shared
decision-making and the
benefits of partnering with
your patient to create an HAE
attack management plan -
Future Letters Patient Template
Download a Dear Future Me
letter template for use with
your patients -
HAE TrackR App
HAE TrackR is an electronic diary
designed to help your patients
easily record their HAE attacks,
treatments (prophylactic and
on-demand), and the impact
HAE has on their lives. The app
also offers prophylactic
treatment reminders -
HAE Emergency Card
An emergency card is a useful
tool for patients to keep in their
wallet or purse to let healthcare
professionals at a hospital or
other medical facility know they
have a diagnosis of HAE. Advise
your patients to download and
print this Emergency Card
template, which is available in a
variety of languages, and fill out
their information


Clinical and Practice Resources
Everyone living with HAE faces a unique HAE Attack Journey, there are several resources available to help patients, caregivers, and healthcare providers to manage the many facets of this disease.
Back to top