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Image of a hand of a person living with HAE holding a letter about their next HAE attack while playing tennis. Image of a hand of a person living with HAE holding a letter about their next HAE attack while playing tennis.

The burden of life-threatening attacks continues, even with prophylaxis1-3

Although long-term prophylaxis reduces attack frequency, both clinical studies and patient-reported data show that all anatomic locations continue to experience attacks, including laryngeal attacks which can be
life-threatening.3

Patients with HAE may fear attacks and make compromises to avoid potential attack triggers,
or don’t treat at all when an attack occurs, adding to the burden of HAE.1,2,4,5

Things your patients
aren’t telling you
with Dr. Burnette

Join Dr. Burnette and patients living with
HAE as they discuss the persistent burden
of HAE and the variety of reasons patients
delay or avoid treatment.1,2

Dr. Burnette is an allergist-immunologist who specialises in adult and
paediatric patients living with HAE.

Hear from our advisory panel, a team of healthcare professionals who have partnered with Mind the HAE Attack
to deliver educational and solution-oriented information about the treatment of HAE.

MEET THE ADVISORY PANEL

References: 1. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. Remaining burden of hereditary angioedema (HAE) attacks despite modern long-term prophylaxis. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press. 2. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. HAE patients decision to carry on-demand treatment when away from home. Abstract presented at: 13th C1-inhibitor Deficiency & Angioedema Workshop, May 4-7, 2023; Budapest, Hungary. Allergy Asthma Clin Immunol. In Press. 3. Longhurst H, Bouillet L, Cancian M, et al. Hereditary angioedema attacks in patients receiving long-term prophylaxis: a systemic review. Presented at: APAAACI October 23-26, 2023; Singapore. 4. Grumach A, van Kooten S, Heckmann M, Danese S, Goga L, Garcez T. Understanding the complex decision-making associated with on-demand treatment of hereditary angioedema (HAE) attacks. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press. 5. Soteres D, Grumach A, van Kooten A, Malloy N, Heckmann M, Ulloa J, Burnette A. Anxiety associated with refilling on-demand therapy for HAE attacks contributes to treatment delay and non-treatment. Abstract presented at: AAAAI 2024 Annual Meeting, February 23-26, 2024; Washington, DC. J Allergy Clin Immunol. In Press.

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